Parents of Infants With Cystic Fibrosis Often Feel Confused, Unsupported: Survey

• Dennis Thompson HealthDay Reporter
• May 6, 2024
• Full Page

Parents of newborns diagnosed with cystic fibrosis often are confused about both the disease and their next steps, a new national survey has found.

In fact, about half of new parents don't even know that newborns are routinely screened for the genetic disorder, the poll ...

Cystic Fibrosis Screening Often Misses Black, Hispanic Babies

• Cara Murez HealthDay Reporter
• October 31, 2022
• Full Page

While early diagnosis of cystic fibrosis can prevent permanent lung damage, newborn screening often looks only for genetic mutations more common in white people than those found in people of color, a new study finds.

"Newborn screenings are meant to be a public health me...

Vitamin Supplements May Help People With Cystic Fibrosis

• By Cara Murez HealthDay Reporter
• October 3, 2022
• Full Page

More than 160,000 people around the world have cystic fibrosis, and supplementing with vitamins C and E could help reduce the damaging inflammation in their lungs, according to new research.

"Cystic fibrosis is a genetic disease that is associated with increased inflamma...

Race Plays Role in How Soon Babies With Cystic Fibrosis Get Care

• By Cara Murez HealthDay Reporter
• August 3, 2022
• Full Page

Babies who are white appear to get diagnostic appointments for cystic fibrosis earlier than babies of several other races and ethnicities, new research shows.

This can cause gaps in care and outcomes.

While it is recommended that infants who have an initial positiv...

Out-of-Network Costs Raise Medical Bills for Special Needs Kids

• By Robert Preidt HealthDay Reporter
• March 28, 2022
• Full Page

Special needs children often require out-of-network care from specialists, which means more out-of-pocket costs and extra stress for families, a new study finds.

"In the U.S., the reality is that the more health care needs you have, especially from specialists, the great...

Research May Help Focus Treatment for Kids With Cystic Fibrosis

• February 18, 2022
• Full Page

Hundreds of new proteins that may be linked to cystic fibrosis have been identified by researchers and could point the way to better treatments for people with the genetic disease.

There is no cure for